Program

3rd International Meeting on Pediatric Gliomatosis cerebri

“From Words to Actions”

Abba Garden Hotel (Barcelona), September 2019


PROGRAM FOR FAMILIES

SUNDAY, SEPTEMBER 22, 2019

  • 9:00 – 9:30 // Reception and presentation of new families
  • 9:30 – 10:00 // Collecting and reviewing the work done
    • Meetings
    • Registries
    • Web
  • 10:00 – 11:00 // How to help families more and better
    • Survey results
    • Talk
  • 11:00 – 11:45 // Between the acts: Coffee break and walk through the exhibition “Estación Esperanza”
  • 11:45 – 13:00 // Proposal of new opportunities:
    • Joint financing of research in GC
  • 13:00 – 15:00 // Between the acts: Visit to the Sant Joan de Déu hospital and lunch in the hotel.
  • 15:00 – 18:00 // Where we are going as an international patient association. Outlining work agenda 2019-2022:
    • Short-term goals
    • Long-term goals
  • 20:00 – 23:00 // As you like it: Welcome reception and dinner (families and professionals). Maritim Restaurant (Moll d’Espanya, 4, 08039 Barcelona)

MONDAY, SEPTEMBER 23, 2019

  • 8:30 – 9:00 // European project Share4Rare
  • 9:00 – 11:00 // Where are we going as an international patient association. Establishing work agenda 2019-2022:
    • Reviewing goals
    • Setting working groups for each goal / task
    • Assigning a person responsible for each task
    • Establishing deadlines
  • 11:00 – 11:15 // Between the acts: Coffee break
  • 11:15 – 13:30 // Sessions with clinicians and specialists
  • 13:30 – 14:30 // Between the acts: Networking lunch
  • 14:30 – 16:30 // Sessions with clinicians and specialists
  • 16:30 – 17:30 // All’s well that ends well: Joint discussion: professionals, foundations and families
    • Share4rare initiative. Speaker: Begonya Nafria
    • How to proceed until our next meeting? Discussion and set up of a 2 years’ joint efforts plan to boost basic, translational, and clinical research in GC
    • Announcement of funding opportunities by GC foundations. Grant call for specific GC multi-institutional (>2 centers) projects.  Speaker: Gloria García Castellví
  • 17:30 // Wrap-up and Adjourn. Mónica Sarasa.

PROGRAM FOR PROFESSIONALS

SUNDAY, SEPTEMBER 22, 2019

  • 20:00 23:00 // As You Like It: Welcome reception and dinner (families and professionals). Maritim Restaurant (Moll d’Espanya, 4, 08039 Barcelona)

MONDAY, SEPTEMBER 23, 2019

  • 8:00 8:30 // For whom the bell tolls (Welcoming and registration)
  • 8:30 11:00 // Sense and sensibility (Basic science session) Moderators: Humsa Venkatesh, Ilon Liu, Natacha Entz-Werle
    • Neuronal activity/dysfunction. Glioma-genesis in the midst of neuronal activation and development
    • How to capture the specific infiltrative phenotype of gliomatosis cerebri by molecular and functional analyses? Single cell sequencing approaches and beyond
    • Role of permissive microenvironment for tumor initiation, formation, migration and invasion
    • Metabolism changes and patterns in tumor cells and its microenvironment
  • 11:00 11:15 // Between the acts (Coffee break)
  • 11:15 12:00 // Imaging including nuclear medicine (Imaging session). Moderators: Brigitte Bison, Giovanni Morana
    • How to diagnose, stage and follow response –or lack of– early in disease course
  • 12:00 13:30 // Of mice and men (Translational science session). Moderators: Chris Jones, Jeff Greenfield
    • Can we learn anything else from histology, IHC or molecular characterization?
    • How to fight the specific infiltrative phenotype of gliomatosis cerebri in cell culture and animal models? Model systems for GC
  • 13:30 13:40 // An industry perspective on rare brain tumors like GC. Speaker: Mark Kieran
  • 13:40 14:30 // Ciderhouse rules (Networking lunch and coffee)
  • 14:30 15:30 // Beefing up immune function (Immunotherapy session). Moderators: Nicholas Vitanza, Angel M. Carcaboso, Marta Alonso
    • What can we learn from GC immune microenvironment? How should we study it?
    • What immunotherapy(ies) approach suits better diffuse infiltrative gliomas, what targets, what models to use in preclinical project?
  • 15:30 16:30 // Turning circle of the cancer (Clinical session). Moderators: Kathy Warren, Christof Kramm
    • How to turn our current knowledge of the specific infiltrative phenotype into treatment strategies? How to set up international collaborative clinical trials for GC?
    • How important are preclinical results (and what types of preclinical data are important for translation to clinical trials)?
    • Shall we prioritize a particular delivery system (i.e. intratumoral, intraventricular, systemic)?
  • 16:30 17:30 // All`s Well That Ends Well (Joint discussion with foundations and families)
    • Share4rare initiative. Speaker: Begonya Nafria
    • How to proceed until our next meeting? Discussion and set up of a 2 years’ joint efforts plan to boost basic, translational, and clinical research in GC
    • Announcement of funding opportunities by GC foundations. Grant call for specific GC multi-institutional (>2 centers) projects.  Speaker: Gloria García Castellví
  • 17:30 // Wrap-up and Adjourn. Mónica Sarasa.