Program

“From Words to Actions”

Abba Garden Hotel (Barcelona), September 2019

9:00 – 9:30 // Reception and presentation of new families
9:30 – 10:00 // Collecting and reviewing the work done
- Meetings
- Registries
- Web
10:00 – 11:00 // How to help families more and better
- Survey results
- Talk
11:00 – 11:45 // Between the acts: Coffee break and walk through the exhibition “Estación Esperanza”
11:45 – 13:00 // Proposal of new opportunities:
- Joint financing of research in GC
13:00 – 15:00 // Between the acts: Visit to the Sant Joan de Déu hospital and lunch in the hotel.
15:00 – 18:00 // Where we are going as an international patient association. Outlining work agenda 2019-2022:
- Short-term goals
- Long-term goals
20:00 – 23:00 // As you like it: Welcome reception and dinner (families and professionals). Maritim Restaurant (Moll d’Espanya, 4, 08039 Barcelona)

8:30 – 9:00 // European project Share4Rare
9:00 – 11:00 // Where are we going as an international patient association. Establishing work agenda 2019-2022:
- Reviewing goals
- Setting working groups for each goal / task
- Assigning a person responsible for each task
- Establishing deadlines
11:00 – 11:15 // Between the acts: Coffee break
11:15 – 13:30 // Sessions with clinicians and specialists
13:30 – 14:30 // Between the acts: Networking lunch
14:30 – 16:30 // Sessions with clinicians and specialists
16:30 – 17:30 // All’s well that ends well: Joint discussion: professionals, foundations and families
- Share4rare initiative. Speaker: Begonya Nafria
- How to proceed until our next meeting? Discussion and set up of a 2 years’ joint efforts plan to boost basic, translational, and clinical research in GC
- Announcement of funding opportunities by GC foundations. Grant call for specific GC multi-institutional (>2 centers) projects. Speaker: Gloria García Castellví
17:30 // Wrap-up and Adjourn. Mónica Sarasa.

20:00 – 23:00 // As You Like It: Welcome reception and dinner (families and professionals). Maritim Restaurant (Moll d’Espanya, 4, 08039 Barcelona)

8:00 – 8:30 // For whom the bell tolls (Welcoming and registration)
8:30 – 11:00 // Sense and sensibility (Basic science session) Moderators: Humsa Venkatesh, Ilon Liu, Natacha Entz-Werle
- Neuronal activity/dysfunction. Glioma-genesis in the midst of neuronal activation and development
- How to capture the specific infiltrative phenotype of gliomatosis cerebri by molecular and functional analyses? Single cell sequencing approaches and beyond
- Role of permissive microenvironment for tumor initiation, formation, migration and invasion
- Metabolism changes and patterns in tumor cells and its microenvironment

11:00 – 11:15 // Between the acts (Coffee break)
11:15 – 12:00 // Imaging including nuclear medicine (Imaging session). Moderators: Brigitte Bison, Giovanni Morana
- How to diagnose, stage and follow response –or lack of– early in disease course

12:00 – 13:30 // Of mice and men (Translational science session). Moderators: Chris Jones, Jeff Greenfield
- Can we learn anything else from histology, IHC or molecular characterization?
- How to fight the specific infiltrative phenotype of gliomatosis cerebri in cell culture and animal models? Model systems for GC

13:30 – 13:40 // An industry perspective on rare brain tumors like GC. Speaker: Mark Kieran

14:30 – 15:30 // Beefing up immune function (Immunotherapy session). Moderators: Nicholas Vitanza, Angel M. Carcaboso, Marta Alonso
- What can we learn from GC immune microenvironment? How should we study it?
- What immunotherapy(ies) approach suits better diffuse infiltrative gliomas, what targets, what models to use in preclinical project?

15:30 – 16:30 // Turning circle of the cancer (Clinical session). Moderators: Kathy Warren, Christof Kramm
- How to turn our current knowledge of the specific infiltrative phenotype into treatment strategies? How to set up international collaborative clinical trials for GC?
- How important are preclinical results (and what types of preclinical data are important for translation to clinical trials)?
- Shall we prioritize a particular delivery system (i.e. intratumoral, intraventricular, systemic)?
16:30 – 17:30 // All`s Well That Ends Well (Joint discussion with foundations and families)
- Share4rare initiative. Speaker: Begonya Nafria
- How to proceed until our next meeting? Discussion and set up of a 2 years’ joint efforts plan to boost basic, translational, and clinical research in GC
- Announcement of funding opportunities by GC foundations. Grant call for specific GC multi-institutional (>2 centers) projects. Speaker: Gloria García Castellví